Most books on terminal illness focus on death and dying. This book is about neither. It doesn't deal with statistics or the medical aspects of a crippling disease, and it isn't written by a celebrity about their amazing recovery. This book is about a real person and a true hero. Bob Horn, an authority on the Soviet Union and foreign policy in the Third World, a successful author and teacher, an involved husband and father of three in his mid-forties, awoke one day to find his entire world upside down. Diagnosed in 1988 with ALS (amyotrophic lateral sclerosis), better known as Lou Gerhig's disease, Bob had to deal with the reality that his situation was terminal. How Bob and his family coped and continue to cope or "battle" as Bob prefers to call it with disability and terminal illness is an amazing story that you will find inspiring, heartwarming, humorous, upsetting, and a celebration of the triumph of life. Having already beaten the odds that say he should have died years ago, Bob accomplished the most unbelievable feat he wrote this book. It was discovered that Bob had a pulse in his right foot that could be felt and manipulated. By hooking his foot up to a computer, Bob found he could maneuver the cursor and produce documents. He has written articles for the Los Angeles Times, sermons for his church, correspondence, and most impressive of all this book. Not bad for a man who is completely paralyzed and hasn't moved in six years!
how will they know if i m dead transcending disability and terminal illness
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This path-breaking Handbook of Disability Studies signals the emergence of a vital new area of scholarship, social policy and activism. Drawing on the insights of disability scholars around the world and the creative advice of an international editorial board, the book engages the reader in the critical issues and debates framing disability studies and places them in an historical and cultural context. Five years in the making, this one volume summarizes the ongoing discourse ranging across continents and traditional academic disciplines. The Handbook answers the need expressed by the disability community for a thought provoking, interdisciplinary, international examination of the vibrant field of disability
Serious illness and mortality, those most universal, unavoidable, and frightening of human experiences, are the focus of this pioneering study which has been hailed as a telling and provocative commentary on our times. As modern medicine has become more scientific and dispassionate, a new literary genre has emerged: pathography, the personal narrative concerning illness, treatment, and sometimes death. Hawkins's sensitive reading of numerous pathographies highlights the assumptions, attitudes, and myths that people bring to the medical encounter. One factor emerges again and again in these case studies: the tendency in contemporary medical practice to focus primarily not on the needs of the individual who is sick but on the condition that we call disease. Pathography allows the individual person a voice - one that asserts the importance of the experiential side of illness, and thus restores the feeling, thinking, experiencing human being to the center of the medical enterprise. Recommended for medical practitioners, the clergy, caregivers, students of popular culture, and the general reader, Reconstructing Illness demonstrates that only when we hear both the doctor's and the patient's voice will we have a medicine that is truly human.
Truly the first book of its kind to take a completely objective look at the issues that surround one's right to make a choice in end of life decisions. Edited by 13-year ALS survivor, Robert Horn, the book offers intimate interviews with 11 individuals who have faced terminal situtations and have made specific decisions on how they are facing the end of their lives. In and around each interview are commentaries by 31 experts from various fields (law, medicine, psychology, nursing, hospice, religion) who provide opinions on both sides of the issues. Among the experts appearing in the book are: Derek Humphry (best selling author of Final Exit), C. Everett Koop, M.D. (former US Surgeon General), Edward Rivet (Right to Life of Michigan), Elaine Buzzinotti, RN, JD, Faye Girsh (Hemlock Society), Rita Marker (International Anti-Euthanasia Task Force) and Dr. Bill Bright (Campus Crusade for Christ). As best selling author, Rabbi Harold Kushner wrote: This is a remarkable book. It plumbs the depths of the human mind and soul, pairing moving personal stories with a broad spectrum of thoughts on end-of-life issues.
There are times in life when a little kindness goes a long way. But in times of crisis or difficulty, it is hard to know what to say or do. The Kindness Handbook is, quite simply, the most practical, nuts-and-bolts guide in print for the person who wants to help friends cope in times of adversity or to show concern for their general well-being. Drawing on her many personal experiences, Jeri-Lynn Johnson gets right to the point and tells readers what to do and what not to do in every situation, including major surgery, unemployment, homelessness, disability, death of a spouse, death of a child, divorce, and many other situations.An essential resource for every home. You'll never feel helpless again!
Presents articles describing the causes and symptoms, diagnosis, treatment (both traditional and alternative), prognosis, and prevention of various diseases, disorders, injuries, and infections.
Discusses the different attitudes and issues related to assisted suicide
This is the only text to provide comprehensive coverage of human growth and development, a requirement mandated by the Council of Rehabilitation Education (CORE) for a master's degree in rehabilitation counseling and for Licensed Professional Counselor certification. Written by an eminent leader in the field of disability studies, this book reflects a significant change in perceptions of individuals with disabilities from being defined foremost by their disability to being viewed as normal individuals with a disability. It provides an understanding of traditional human growth and development that will enhance the practice of disability counseling by enabling an understanding of a client's childhood and prior life experiences. The book begins with a focus on developmental theories and tasks, followed by a discussion of cultural and ethical considerations in human development. It considers the major theories of human development as they relate to people with and without disabilities, and career theories with a focus on the concept of choice. The book addresses specific developmental stages including a description of developmental tasks, risks, disability applications, specific disabilities common to a particular stage, and cultural and ethical issues, all supported by case examples. Key Features: Fulfills the required CORE mandated course on human growth and development and the disability experience Addresses disability across the lifespan in relation to developmental stages Authored by highly a respected expert in disability studies