family caregiving in the new normal

Family Caregiving In The New Normal
Author: Joseph Gaugler
Publisher: Academic Press
Release Date: 2015-05-08
Pages: 404
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models Examines how existing efficacious models can more effectively reach and serve individual families

The Spectrum Of Family Caregiving For Adults And Elders With Chronic Illness
Author: Louis D. Burgio
Publisher: Oxford University Press
Release Date: 2016-01-07
Pages: 248
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

The vast majority of care provided to adults and elders with chronic illness is given in the home, most often by family members. The caregiver's role is daunting; caregiving is often referred to as a 'career,' requiring long hours and arduous tasks. Primary caregivers show higher rates of morbidity and mortality, and caregiving is a major source of stress and burden to caregiving families. Presently, very little support is available to caregivers from either State or Federal agencies. However, awareness of this worsening problem is growing among health professionals and policy makers. The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness is written for individuals in the helping professions who are in roles that interface with or serve family caregivers who are supporting an adult or elder with a chronic condition. The volume includes eight disease-specific chapters written by experts from various disciplines. Each discusses the caregiving role and includes a thorough review of the literature on the characteristics of caregivers and care-recipients, including related care needs, issues, and challenges unique to that chronic illness. Chapters also review the extant literature on caregiver interventions. An Evidence Table is included in each of these chapters so that the reader can easily judge the quality of evidence supporting the intervention studies. Finally, each chapter includes two case studies describing common problems encountered by caregivers, along with descriptions of interventions used to address these problems. The final chapter summarizes the state of the science on caregiving roles and caregiver interventions and discusses the most relevant challenges and barriers faced by today's caregivers and caregiver advocates. This book will be valuable to clinicians and those in the helping professions, as well as academics and researchers with an interest in the study of family caregiving and caregiver interventions, and to health administrators, public officials, and policy makers concerned with chronic illness care and management.

The Family Caregiver S Guide
Author: Harriet Hodgson
Publisher: BQB Publishing
Release Date: 2015-09-07
Pages: 180
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Caring for a loved one at home. What’s really involved? And what does it mean for your family and future? Tens of millions of Americans have had these questions and more as they prepare for this unsettling yet necessary task. The Family Caregiver’s Guide fills in the gaps, connecting the dots between research and real life. Drawing on the author’s extensive caregiving experience, this book provides strategies to care for your loved one, inside and out, as well as for yourself—including how to use your natural skills in your new role, and which skills you may need to add. You’ll discover how to set up your home for caregiving, including a safety checklist, equipment suggestions, and words you should know. And for those days that are more than a handful, you’ll find positive affirmations, a section on facing and accepting illness, and smart steps at the end of each chapter, in case you need guidance in a hurry. Caregiving has both rewards and challenges. But through it all, you’ll discover what’s most important—that caregiving is love in action.

Building Better Caregivers
Author: Kate, Lorig Dr.P.H.
Publisher: Bull Publishing
Release Date: 2018-06-20
Pages: 400
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Today more than 40 million people in the U.S. find themselves responsible for caring for a parent, relative, or friend. Building Better Caregivers, developed by the author team of the bestselling Living a Healthy Life with Chronic Conditions, shares the best in caregiving research and the most important lessons learned from thousands of caregivers. With a focus on reducing stress through the use of practical skills and tools, this book will help you manage your caregiving tasks so you can maintain a happy, fulfilling life while also meeting your caregiving obligations.

Passages In Caregiving
Author: Gail Sheehy
Publisher: Harper Collins
Release Date: 2010-05-04
Pages: 416
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

“One of those rare books that can drastically lighten even the heaviest of loads.” —Rosalynn Carter “Trust me: there is no better guide to caregiving.” —Bill Moyers Gail Sheehy, author of the groundbreaking Passages—which was a New York Times bestseller for more than three years—now brings us Passages in Caregiving. In this essential guide, the acclaimed expert on the now aging Baby Boomer generation outlines nine crucial steps for effective, successful family caregiving, turning chaos into confidence during this most crucial of life stages.

Family Caregiving
Author: Whitney A. Bailey
Publisher: Springer
Release Date: 2017-10-28
Pages: 146
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

This comprehensive resource offers a detailed framework for fostering resilience in families caring for their older members. Its aim is to improve the quality of life for both the caregivers themselves as much as for those they support. Robust interventions are presented to guide family members through chronic and acute challenges in areas such as emotional health, physical comfort, financial aspects of care, dealing with health systems, and adjusting to transition. Examples, models, interviews, and an extended case study identify core concerns of caregiving families and avenues for nurturing positive adaptation. Throughout, contributors provide practical applications for therapists and other service providers in diverse disciplines, and for advancing family resilience as a field. Included in the coverage: Therapeutic interventions for caregiving families. Facilitating older adults’ resilience through meeting nutritional needs. Improving ergonomics for the safety, comfort, and health of caregivers. Hope as a coping resource for caregiver resilience and well-being. Perspectives on navigating care transitions with individuals with dementia. Planning for and managing costs related to caregiving. Family Caregiving offers a new depth of knowledge and real-world utility to social workers, mental health professionals and practitioners, educators and researchers in the field of family resilience, as well as scholars in the intersecting disciplines of family studies, human development, psychology, sociology, social work, education, law, and medicine.

Physical Medicine And Rehabilitation E Book
Author: Randall L. Braddom
Publisher: Elsevier Health Sciences
Release Date: 2010-12-07
Pages: 1472
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Physical Medicine and Rehabilitation presents today’s best physiatry knowledge and techniques, ideal for the whole rehabilitation team. This trusted reference delivers the proven science and comprehensive guidance you need to offer every patient maximum pain relief and optimal return to function. In this new edition, Dr. Randall L. Braddom covers current developments in interventional injection procedures, the management of chronic pain, integrative medicine, recent changes in the focus of stroke and brain injury rehabilitation, and much more. Access the complete contents online along with 1000 self-assessment questions at www.expertconsult.com. Gain a clear visual understanding of important concepts thanks to 1400 detailed illustrations—1000 in full color. Find and apply the information you need easily with each chapter carefully edited by Dr. Braddom and his associates for consistency, succinctness, and readability. Access the fully searchable text online at Expert Consult, as well as 1000 self-assessment questions. Master axial and peripheral joint injections through in-depth coverage of the indications for and limitations of these therapies. Make optimal use of ultrasound in diagnosis and treatment. Get a broader perspective on your field from a new chapter on PM&R in the international community.

Essentials Of Clinical Geriatrics  Eighth Edition
Author: Robert L. Kane
Publisher: McGraw Hill Professional
Release Date: 2017-09-29
Pages: 608
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

The leading introductory textbook on geriatrics – completely updated and revised Essentials of Clinical Geriatrics is an engagingly written, up-to-date introductory guide to the core topics in geriatric medicine. Since 1984, its goal has remained unchanged: to help clinicians do a better job of caring for their older patients. You will find thorough and authoritative coverage of all the important issues in geriatrics, along with concise, practical guidance on the diagnosis and treatment of the diseases and disorders most commonly encountered in an elderly patient. Presented in full-color, this classic features a strong focus on the field’s must-know concepts, from the nature of clinical aging to differential diagnosis of important geriatric syndromes to drug therapy and health services. The Eighth Edition has been completely revised to provide the most current updates on the assessment and management of geriatric care. FEATURES: • Numerous tables and figures that summarize conditions, values, mechanisms, therapeutics, and more • Thorough coverage of preventive services and disease screening • Eight chapters devoted to general management strategies • Important chapters on ethical issues and palliative care • Appendix of Internet resources on geriatrics Essentials of Clinical Geriatrics, Eighth Edition is the best resource available to help healthcare professionals provide the innovative, cost-effective, and person-centered care that older people and their caregivers deserve.

Dementia And Social Work Practice
Author: Carole B. Cox, PhD
Publisher: Springer Publishing Company
Release Date: 2007-04-15
Pages: 456
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

"Practical coverage of driving, day care, support groups, and respite is particularly welcome. This is a good book to have available, not just for social work faculty and students, but also for those in the health sciences, psychology, and sociology. It will be a useful resource for professionals coping with the increasing problems for family and community that an aging population and the epidemic of Alzheimer's disease bring with them....Recommended. Lower-level undergraduate through professionals/practitioners."--Choice Beyond the immediate and devastating effects dementia can have on individuals and their quality of life are the strains that are placed on the families, caregivers, and communities that support them. Social workers are in a unique position to address all these issues at the same time that they provide care for individuals with dementia. To facilitate the entrance of social workers into this area of care, Carol B. Cox has edited a volume of expert articles on the biological, psychological, and social aspects of dementia. . Readers will learn the latest assessment instruments, as well as how to distinguish between Alzheimer's and non-Alzheimer's dementias. Intervention strategies for every stage of dementia are presented. The effects of culture and diversity on the treatment of persons with dementia are examined, including examples of successful programs from several countries. The benefits and drawbacks of adult day services, community care, and residential care are discussed. Finally, a discussion of the legal, financial, and psychological stresses faced by caregivers of those with dementia rounds out this much needed text.

Homeward Bound
Author: Amy Ziettlow
Publisher: Oxford University Press
Release Date: 2017-04-10
Pages: 240
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Homeward Bound shows that as family structure becomes more complex, so too does elder care, and existing institutions and legal approaches are not prepared to handle those complexities. As 79 million American Baby Boomers approach old age, their diverse family structures mean the burden of care will fall on a different cast of family members than in the past. Our current approaches are based on an outdated caregiving model that presumes life-long connection between the parents and offspring, with the existence of high internal norm cohesion among family members providing a valuable safety net for caregiving. Single parent and remarried parent-led families are far more complicated, fragile, and point to the need for increased formal support from the religious, medical, legal, and public policy communities. We base our analysis on in-depth, qualitative interviews with surviving grown children and stepchildren whose mother, father, stepparent, or ex-stepparent died. Their stories illustrate the profound ways that the caregiving, mourning, and inheritance process has changed in ways not adequately reflected in formal legal, medical, and religious tools. The solutions center on awareness and preparation: providing more support for individual planning for incapacity and death and, even more importantly, creating legal, political, and social planning for the "graying of America" at a time of increasingly complex familial ties.

Nursing Care Of Children   E Book
Author: Susan R. James
Publisher: Elsevier Health Sciences
Release Date: 2014-04-14
Pages: 880
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Master the art of caring for children with most effective, efficient, and affordable title on pediatric nursing care. Taking on a family focus, this student-friendly text teaches growth, development, and information on the major body system alterations. Plus, dramatically streamlined content and new learning tools make this new edition even more tailored to your learning needs. Expert reviews of chapter content ensure all chapters include current practices, terms, and updated information. Health Promotion boxes summarize information from the American Academy of Pediatrics to teach you how to perform a comprehensive assessment of well infants and children at various ages. Illustrated Procedure boxes include step-by-step instructions for common nursing tasks. Pathophysiology boxes explain changes in physiology that occur in a variety of diseases and disorders in children. Nursing process highlighted in nursing care plans and in-text discussions. Clinical Reference pages provide students with easy-to-find reference sections, including basic anatomy and physiology, pediatric differences, related laboratory and diagnostic tests, and commonly prescribed medications. Safety Alert boxes highlight patient safety as part of the QSEN initiative for better outcomes of nursing care. Updated Evidence-Based Practice boxes (formerly Using Research to Improve Practice) assist you in determining best practices in your future care of children. Patient-Centered Care boxes guide you in teaching the parents and child about self-care in the home and follow-up care in community-based health care settings. Streamlined Nursing Care Plans have been reformatted to make them easier to read and use. Updated photos throughout the book keep the text up-to-date and visually appealing. Key concepts are highlighted in the book and their definitions are provided in a glossary.

Annual Review Of Gerontology And Geriatrics  Volume 32  2012
Author: Bert Hayslip, Jr., PhD
Publisher: Springer Publishing Company
Release Date: 2012-02-01
Pages: 300
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

"This collection is a timely and excellent contribution to the study of resilience and the field of gerontology."--Anthropology and Aging Quarterly This state-of-the science, multidisciplinary Annual Review of Gerontology and Geriatrics provides a comprehensive examination of critical issues on resilience in a variety of life domains central to the well-being of older persons. It examines the role of resilience in determining adjustment and function in the domains of health, grief and bereavement, physical activity and functioning, spirituality, work, retirement, intellectual/cognitive functioning, coping with life events, care giving, and mental health interventions. The first section of the book addresses such domains of resilience as immunological function, stress and mood disorders, emotional and cognitive resilience, adjustment to cultural and environmental changes, and spirituality. Section two is concerned with practical applications of resilience. A developmental family perspective is used to examine differences in adaptation to age-related challenges. The role of resilience in geriatric rehabilitation is discussed as is adaptive coping in regard to loss and trauma. The text also explores resilience in regard to career management, retirement, and volunteerism, considers resilience as a component of health in regard to public policy, and examines exemplary public health programs and policies and the relationship of resilience to health care finance. Also addressed is resilience in caregiving as a mutually beneficial process, clinical interventions that enhance resilience, and resilience from a lifespan developmental perspective. Key Features: Synthesizes the best current research in the field, with direct practice implications Addresses resilience in regard to immunological function, emotional and cognitive resilience, and spirituality Explores the role of resilience in geriatric rehabilitation, career management and retirement, person-environ fit, and public health and policy Examines directions for future research and resilience-oriented interventions

We Re In This Together
Author: Rob Harris
Publisher:
Release Date: 2012-05
Pages: 284
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

"You have cancer." These three simple words strike terror in the hearts of anyone diagnosed with this horrific disease. For any spouse, friend, partner, or relative, the news can be just as devastating. Suddenly, you find yourself in the role as caregiver. You want to help, but how? This heartwarming story offers insight into the life of the author, who stood by his wife's side as she confronted not one, but two very deadly episodes of cancer. The strategies provided in this touching book will benefit any new or even veteran caregiver, as well as patients, family members, friends, and members of the medical community that are wondering what they should know and do if, or when, personally confronted with a loved one or friend with a debilitating illness or injury. "We're In This Together" provides 70 Caregiver Tips learned during the author's journey as a caregiver, including: Receiving the news: How do I manage my emotions and still be supportive? Understanding diagnoses and treatments: Tracking the details that matter. Spending time in the hospital: How the new "normal" can be inspiring and even fun. Becoming the great communicator: Sharing the news with friends and family. Handling setbacks and overcoming obstacles: Finding the good in "every stinkin' day." Taking care of yourself: Balancing the demands of caregiving with your own personal needs. This emotional true story reads like a fast-paced, gripping action novel. At the same time, it's informative, thought provoking and a book you will not soon forget. The number of caregivers in the United States is staggering. According to the National Family Caregivers Association's caregiving statistics, more than 65 million people (that's 29 percent of the US population) provide care for a chronically ill, disabled, or aged family member or friend during any given year; on average, caregivers devote 20 hours per week providing care for loved ones. This book provides every caregiver, regardless of the reason or length of time they have been in this position with the valuable tools they need to navigate through their medical journey. The author provides solutions and support for dealing with the mental, physical and emotional aspects of caregiving. Being a caregiver can be a wonderful experience. It can change your life, all for the better. By reading this book, you, too, can appreciate every single day in a way you have never experienced before or ever thought imaginable. Here's What Others Are Saying About This Book: "Romantic and real, practical and inspiring, Rob Harris has struck a nerve with his helpful book about the journey he has been on with his wife. Caregiving unlocks the hero inside each of us, if we can just get past the fear. Rob shows us how to do that and reminds us that love really does transcend everything. If you're on a caregiving mission or if you just need to come face to face with humanity at its best, this book is for you." Leeza Gibbons, TV host and founder, Leeza's Place: A Place for Family Caregivers "I am so impressed with this book My vision is that this book would be a valuable addition to medical school and nursing school curriculum, serving as a trigger to help health professionals, patients, and caregivers alike understand what person-centered care really means. After all, we're in this together." Michael Fisch, MD, MPH, FACP, FAAHPM, chair, Department of General Oncology, MD Anderson Cancer Center, Houston, TX "A passionate and heart-wrenching page-turner that eloquently captures the joys and frustrations of becoming a caregiver. An absolute must-read for anyone with loved ones fighting for their lives." Karen Glowacki, communications director, WhatNext.com

The Alzheimer S Caregiving Puzzle
Author: Patricia R. Callone, MA, MRE
Publisher: Demos Medical Publishing
Release Date: 2010-09-29
Pages: 164
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

In the US 5.2 million people live with Alzheimer's disease, it is the sixth-leading cause of death and ten million baby boomers will develop Alzheimer's in their lifetime. Alzheimer's often takes a bigger toll on the caregivers of persons living with Alzheimer's, generally family members, loved-ones and friends. Written by two caregivers with 55 years of experience, the book addresses the challenges caregivers face dealing with the behaviors of those they are caring for. Through the use of diagrams, charts, examples, and stories the book will help caregivers to understand what their loved ones are going through. And what they, as caregivers, are going through as well. Although no one has all the answers to the puzzle of Alzheimer's yet, this book will help people to understand and give better care to persons living with and the people caring for them. The Alzheimer's Caregiving Puzzle shows The basic concepts of Alzheimer's disease and its progression across the brain What loved ones need as the disease progresses Outlines three caregiving styles Charts caregiving stages Five healthy caregiving practices How to give dignified, appropriate and safe care How to be compassionate with others and forgiving of one's self

International Encyclopedia Of Marriage And Family  Ab Du
Author: Rory J Donnelly
Publisher: MacMillan Reference Library
Release Date: 2003
Pages: 1838
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Contains over three hundred alphabetically arranged articles that provide information about issues related to marriage and family, focusing on the diversity of marriage and family lifestyles in fifty countries representative of the regions of the world.

The Practical Caregiver S Guide To Rock Star Caregiving
Author: Sara M. Barton
Publisher: Sara Barton
Release Date: 2020-06-29
Pages: 37
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

What do rock stars and seriously ill people have in common? They need good managers to help them cope with the challenges of their often chaotic and stressful lives. How do you become a rock star caregiver? You provide comfort, compassion, and companionship to someone whose life is fraught with overwhelming physical obstacles and challenges. As more and more patients live with illnesses that were once considered terminal and seek to find the “new normal”, it’s important to understand the impact of being seriously ill on the psyche. This short guide by the author of “The Practical Caregiver’s Essential Guide” and “The Practical Caregiver’s Guide to Home Hospice Care” can help you insure quality of life in practical ways.

Sourcebook Of Family Theory And Research
Author: Vern L. Bengtson
Publisher: SAGE
Release Date: 2004-11-09
Pages: 688
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Sponsored by the National Council on Family Relations, the Sourcebook of Family Theory and Research is the reference work on theory and methods for family scholars and students around the world. This volume provides a diverse, eclectic, and paradoxically mature approach to theorizing and demonstrates how the development of theory is crucial to the future of family research. The Sourcebook reflects an interactive approach that focuses on the process of theory building and designing research, thereby engaging readers in "doing" theory rather than simply reading about it. An accompanying Web site, http://www.ncfr.org/sourcebook, offers additional participation and interaction in the process of doing theory and making science.

Contemporary Migrant Families
Author: Magdalena Ślusarczyk
Publisher: Cambridge Scholars Publishing
Release Date: 2018-10-12
Pages: 231
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Despite extensive and continuous academic interest in migrant and transnational families, a stereotypical view that those leading mobile lives are somehow beyond the contours of normativity is still prevalent. Such a perspective concerns both kinship and family practices of “familyhood” across borders, and the bi- or multicultural settings of providing or offering care. Consequently, we primarily hear about migration leading to broken relationships, the dissolution of families and bonds, substandard provisions of care, abandonment, exploitation of employees and so on. In this climate of public imagination of migrants either being “dangerous” or concurrently stealing one’s job and scrounging off the welfare state, it is no small feat to be a migration scholar. Trying to overcome the universalising views that essentialise human experience requires a wholly different point of departure, one which is represented in this volume. This is because a now well-established transnational paradigm allows for a more nuanced analysis, originating with the premise that not only normalises mobility, but also proves that various ties and relationships can be continued in the long-term despite spatial distance. On the whole, the transnational lens provided here showcases how new family practices are devised and deployed in mobile family lives, thus allowing the argument that migration enriches certain dimensions of contemporary family life and caregiving. This book plays on the dichotomy of migration as “the new normal” and mobility as a continuous source of challenges. The core issues examined here concern such problems as maintaining kinship ties across borders, new patterns of mothering and fathering, children’s sense of belonging and identifications, and social capital and engagement in community life. It reveals that “doing family” in the migration context often eludes simple definitions of national space or typical family. Instead, it offers a transnational understanding of how a person practically and pragmatically arranges one’s family and kinship, strategically choosing pathways of care, child-rearing, relationships at home, maintaining traditions and so forth.

Elder Care Journey
Author: Laura Katz Olson
Publisher: SUNY Press
Release Date: 2016-04-22
Pages: 228
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

Combining expert knowledge and first-hand experience, a noted elder care researcher confronts the long-distance care of her own mother. For millions of Americans caregiving is the “new normal.” For Laura Katz Olson, a respected researcher of long-term care for the aging, Elder Care Journey chronicles the disruption of her world and how it is upended by the ever-increasing long-distance needs of her own mother. A healthy, Senior Olympics medal winner, Olson’s mother is slowly and steadily incapacitated by Parkinson’s disease and a gradual loss of vision. Thrust into a long-distance caregiving role, Olson finds her previous academic notions about assisting a frail parent increasingly at odds with the reality of the lived experience. In a narrative full of “ah-ha!” moments, tears, sighs, and outrage that will be familiar to many, Olson opens a window into the nursing home and home care industries that consume much in the way of taxpayer dollars, but often fail to deliver quality care. Olson’s personal story vividly demonstrates not only the overwhelming bureaucratic barriers faced by care-dependent seniors but also their beleaguered adult children’s attempts to ensure their parents’ health, safety, and well-being. “After losing two siblings, Laura Katz Olson is left singularly responsible for her physically active and lively mother, Dorothy, a thousand miles away, both young at heart and eagerly bicycling everywhere, but increasingly limited by the normal process of aging. Being an expert on aging and health care, Olson is at first confident as she tries to let her mother ‘age in place.’ More than anyone, she believes, she should know what to do. Shuttling between Florida and Pennsylvania, Olson settles into a crushing routine, and with each visit she finds incremental downward change in her mother’s health. Pulled by daughterly guilt at times, but also a wellspring of love, Olson is frank about the resentment she sometimes experiences. “With a unique perspective that links the systemic flaws in our policy approach to elder care to real-world experience, Olson exposes the challenges we all face or are likely to face. More than a personal story, but nevertheless an extremely compelling one, the book should be read by those confounded and frustrated, and by those without direct knowledge of what quietly repeats itself millions of times a day.” — Miriam Laugesen, Department of Health Policy and Management, Columbia University “In Elder Care Journey, Laura Olson tells the riveting story of helping her aging, disabled mother navigate the system of long-term services and supports. A renowned scholar of aging and long-term care policy, Dr. Olson was nevertheless unprepared for the daily frustrations involved in confronting a bewildering array of obstacles, deceptions, burdensome and repetitive procedures and paperwork, and catch-22s, ranging from the annoying to the downright dangerous. She shows how well-intentioned policies can fall far short of meeting people’s needs, especially for those in greatest need, in a system based on fragmented interests and private-sector profit maximization. Combining scholarly expertise with personal experience, she ends the book with a detailed but highly accessible analysis of the long-term care system and how it could be improved to the benefit of both taxpayers and beneficiaries. This book is a compelling read for policymakers and for students and scholars of health care and social welfare policy, highly recommended for undergraduate and graduate courses. The author’s experiences also provide helpful advice to caregivers on what to expect and how to deal with it, as well as reassurance that they are not alone.” — Christine L. Day, University of New Orleans “If a society is judged by how well it treats its most vulnerable members, Laura Katz Olson, a prominent health policy scholar, demonstrates that we have a long way to go in how we serve frail and disabled elders in need of long-term services and supports at the end of their lives. Olson develops a compelling narrative that describes the subtle and not-so-subtle indignities imposed on elders and their caregivers navigating the complex maze of health and social service systems at their hour of greatest need. Even an expert such as Olson struggled in light of the challenges posed by these impediments. “By connecting her own personal journey to the larger societal challenges within which her struggles are embedded, Olson makes a significant contribution to the literature that should be required reading for scholars, practitioners, and policymakers looking to advance the welfare of the nation’s most vulnerable citizens.” — Edward Alan Miller, author of Block Granting Medicaid: A Model for 21st Century Medicaid Reform? “This page-turner is at once a tender tale of a daughter’s devotion and a stinging indictment of the hugely complex and wholly inadequate American long-term care system. That an elder-care expert can barely navigate the Byzantine web of public and private insurance and services for her disabled mother is alarming enough. Truly horrific are the system’s shortcomings and the increasing role that for-profit providers play, fleecing and even abusing their customers. A startling wake-up call.” — Andrea Louise Campbell, author of Trapped in America’s Safety Net: One Family’s Struggle

A Cancer Survivor S Almanac
Author: National Coalition for Cancer Survivorship
Publisher: Wiley
Release Date: 1996-11-20
Pages: 384
ISBN:
Available Language: English, Spanish, And French
EBOOK SYNOPSIS:

"I’m thrilled that this book is available to cancer survivors. I only wish I’d had a copy 10 years ago when I was diagnosed with breast cancer." —Jill Eikenberry, actor and breast cancer advocate "A valuable resource for survivors." —Peari Moore, RN, MN, FAAN, Executive Director, Oncology Nursing Society "A Cancer Survivor’s Almanac is a clearly written, sensitive, and sensible guide to surviving with cancer. This almanac can help you more comfortably and knowledgeably take charge of your life with cancer." —David Spiegel, MD, Professor of Psychiatry & Behavioral Sciences, Stanford University School of Medicine, and author, Living Beyond Limits (Ballantine, 1994) "This indispensible quide provides helpful information and much-needed support that will improve the quality of life for cancer survivors." —Richard Klausner, MD, Director, National Cancer Institute "From the time of its discovery and for the balance of life, an individual diagnosed with cancer is a survivor." —National Coalition for Cancer Survivorship Charter A Cancer Survivor’s Almanac: Charting Your Journey serves as a guide to help survivors, caregivers, families, and friends chart a survivorship journey. Written by the survivors and professionals who founded the cancer survivorship movement, A Cancer Survivor’s Almanac provides essential up-to-date, practical information on: The latest information in medical diagnosis, treatment, pain control, and long-term and late effects of cancer treatment Health insurance — how to find and keep it under the most current laws (including the federal health reform law which takes effect in 1997) Tips on how to find and work with the best doctors and hospitals Understanding the risks and benefits of unconventional treatments How to win the battle against job discrimination Clear answers to legal and financial questions How to cope with the personal and social impact of cancer Communicating with family and friends, including dealing with grief and loss The benefits of peer support, with tips on starting your own peer-support network Advocating for yourself and others In addition, an expanded Resource Section lists hundreds of organizations and agencies that offer help regarding specific cancer-related issues and explains how to find cancer information through the Internet. Cancer survivors and their caregivers, families, and friends share their greatest gifts to today’s survivors— the power of knowledge. No cancer journey is easy. This book, however, provides the information, understanding, support, and resources to help dispel the myths and improve the quality of life with, through, and beyond cancer. All royalties from the sales of this book benefit the National Coalition for Cancer Survivorship.